Small victory

There’s no news yet about the regaining services for J.  We are in limbo and it’s frustrating.  I am really grateful though for people who have stepped up and helped where they can. It’s really encouraging to see that and to feel love from people.  You know who you are.  Thank you.  We are also grateful that there have been even more people praying for us.  Thank you again.  We need it every day.

So, now onto the small victory.  Things are beginning to fall into place for us to finally get J the MRI that Dr. D would like to get for him, as well as me.  It’s huge that Dr. C (primary care doctor) is on board with it. For anyone not familiar with NF, it’s kind of controversial regarding getting an MRI at this stage. You see, J isn’t really symptomatic for the need necessarily, but there could very well be tumors growing where they shouldn’t be without us knowing, especially with how quickly he has been growing them just under his skin. Tumors is the easy word for what they really are.  They are called fibromas. They are benign little tumors that grow on the nerve endings. J has, what I guess at this point, to be about 15 of these little fibromas.

Dr. T isn’t a huge fan of doing the MRI, but for my peace of mind, we need to do this.  That, and shoot, we’ve hit our deductible for the year, so let’s do this while we can. This mama needs to know.  I need to know how things are shaping in his brain and how things are going for him. I want to get a baseline of how his brain is doing so that we can keep an eye on him. The advantage of things is that if his scans come back totally clean, we then will be able to monitor changes in him for the future. This is a good thing for sure.

Now to just get things over to the hospital we are going through for the MRI tomorrow and be able to get things scheduled soon. I can only hope that it’ll be soon. I don’t want to wait too much longer for this. I really don’t. I know that God’s got him, but to have an idea of how things are shaping up will just be a bonus. Well, that’s about it for now.

Quick Update…

Hey there friends…I know it’s been a while. lol…as you can imagine, life is really crazy right now.  School is underway and I’m homeschooling J this year.  It’s been really awesome for the most part.  I seriously love it. J loves it.  It’s awesome. J is also really busy with his therapies at Easter Seals, which is great.  We do need prayer that we can keep him going though.

There was a billing error on their end and I never got a statement that we had a bill.  Crazy!  They thought I was nuts to think that we didn’t owe anything…I was hoping…but I knew we did, but without a statement to say we owe, how can I pay?  So, anyway, I’m currently doing a fundraiser through Tupperware to help get his bill down so we can keep his services. If you wish to support it, please feel free to go here: http://order.tupperware.com/coe/app/home It’ll say welcome to James Gabhart’s fundraiser…but that’s only because Tupperware is going to be making the check out to my husband. I’m hoping to close it tonight, so it’ll have to be a quick turn around for you if you’re wanting to support that way.  If you want to donate directly to his bill, let me know and I’ll get you the information for payment to be sent.

C is doing well with preschool…he actually loves it.  He gets to ride the bus everyday.  A has fun standing at the door each day and says “Bye Bubba!”. So cute.  I’m really blessed.

We are getting closer to being able to get the MRI done for J.  Our local neuro, Dr. D has gotten things figured out with the hospital we are looking at going to for it. Now it’s up to our primary care to give the ok and prescribe the anesthesia J is going to need.  I highly doubt my squirmy boy is going to hold still for it…especially since they are recommending it to have contrast done too since it’s the first one and we don’t want miss anything.  Hopefully we can get it set up soon.

Well, I’m getting ready to have a night away from my kids. I am blessed to get to go to the Women of Faith Conference in Indianapolis this weekend.  Yay for my ladies bible study going and being able to go too. 😀  I am going to do better about posting a little more frequently…life has been so so crazy trying to adjust to doing school and therapy and doctor appointments. I don’t feel like I have time to breathe half the time! lol.

Until next time friends….