Small victory

There’s no news yet about the regaining services for J.  We are in limbo and it’s frustrating.  I am really grateful though for people who have stepped up and helped where they can. It’s really encouraging to see that and to feel love from people.  You know who you are.  Thank you.  We are also grateful that there have been even more people praying for us.  Thank you again.  We need it every day.

So, now onto the small victory.  Things are beginning to fall into place for us to finally get J the MRI that Dr. D would like to get for him, as well as me.  It’s huge that Dr. C (primary care doctor) is on board with it. For anyone not familiar with NF, it’s kind of controversial regarding getting an MRI at this stage. You see, J isn’t really symptomatic for the need necessarily, but there could very well be tumors growing where they shouldn’t be without us knowing, especially with how quickly he has been growing them just under his skin. Tumors is the easy word for what they really are.  They are called fibromas. They are benign little tumors that grow on the nerve endings. J has, what I guess at this point, to be about 15 of these little fibromas.

Dr. T isn’t a huge fan of doing the MRI, but for my peace of mind, we need to do this.  That, and shoot, we’ve hit our deductible for the year, so let’s do this while we can. This mama needs to know.  I need to know how things are shaping in his brain and how things are going for him. I want to get a baseline of how his brain is doing so that we can keep an eye on him. The advantage of things is that if his scans come back totally clean, we then will be able to monitor changes in him for the future. This is a good thing for sure.

Now to just get things over to the hospital we are going through for the MRI tomorrow and be able to get things scheduled soon. I can only hope that it’ll be soon. I don’t want to wait too much longer for this. I really don’t. I know that God’s got him, but to have an idea of how things are shaping up will just be a bonus. Well, that’s about it for now.